My 2017 Christmas Card Tally

15 June 2014

A Message For You

Good morning my lovely crafty friends.

I have decided to write this post as some of you already know and others do not.  My darling Husband Mark had Melanoma cancer in 2006 and it recurred this time last year to stage 3 - after what we thought was a dislocated collar bone, actually turned out to be the return of the melanoma and we are now at Stage 4 which is incurable.

He has a tumour in his clavicle bone and several spot points the other side and around his neck, there are also some findings of something going on with his liver.  Mark has a full body PET scan first thing on Wednesday morning where they will look at his organs, I already know part of another scan has showed up spots on his lungs - we found this out yesterday.

Luckily for Mark he is BRAF+ which means he has a mutant gene that only 5% of patients have which means he can have a form of chemotherapy by tablet - this has an 80% success rate and starts to work within a week, shrinking down the cells and moving around the blood stream blocking.  We know that with each individual this will work for only a limited time - could be 6 months, could be over a year - but there are other drugs he can take.  He will also be having radio therapy on the pinpointed areas.  If he had not had this gene the outlook was quite dismal.

There has been a lot to take in and life is like being on an emotional roller coaster, my emotions vary from being upset, angry, frustrated, helpless and most of all scared, but I am being very strong in front of Mark and the girls to get them through this horrible illness.

So this is why I haven't been around or visiting any of your lovely blogs - time and tiredness do not allow right now, I am hoping to be able to get into my crafty haven when he is back home from hospital to be able to relax and take my mind off things - work is being a distraction at the moment.

I want to thank those of you who have already sent best wishes and support - this means so much and helps us through as it is one day at a time.

I will of course keep you updated - people can react to you in very different ways, please don't be a stranger.

Claire x

51 comments:

  1. So very sorry to read this Claire, I have e mailed you. Susan xx

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  2. Hi Claire, Debs told us this devastating news on the Winter Wonderland admin blog but I didn't want to say anything on here until you'd had chance to tell everyone. I am so unbelievably sorry for what you and Mark are going through, no one should have to go through this. I want you to know that you are both very much in my thoughts and that there is so much love and support here for you in the crafting world. I really hope that the treatment you mentioned is successful.
    Much love,
    Rebecca. xxx

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  3. So sorry to read this Claire. You are in my thoughts xxxx

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  4. Hi Claire, so sorry to read this. I do hope the new treatment will be successful.
    My thoughts are with you and Mark.
    Hugs, Avril xx

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  5. So sorry to hear this Claire, you know where I am should you need to talk. I have been & will be thinking of you all.
    Biggest of hugs
    Carole xXx

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  6. Thinking of you you all x x

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  7. I was the same last year Claire every different emotion, but you have to think positive thoughts that is the way we dealt with it, I know everyone is different we made plans for the following year and thank god he is still here. You are both in my prayers
    Chris x

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  8. Sending biggest virtual hugs and will be thinking of you all Claire. Thoughts, prayers and warmest wishes.
    Laine
    xx

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  9. my thoughts, prayers and positive wishes are with you now Claire, hope that this new treatment will help. You have been amazingly strong xx

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  10. Thinking of you all Claire. xx

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  11. Oh, Claire, I'm so sorry to hear this. My heart goes out to you all. Trying to stay positive is hard, I know, but sheer willpower can work wonders. I know I'm a long way from you, but if there's anything at all I can do, just shout. Sending love and hugs, Tracey xxx

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  12. Thinking of you all and sending lots of positive vibes your way
    hugs
    Claire xx

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  13. Sending you both all the love and best wishes - you know where I am - anytime.
    Stay strong hun.
    Debs xx

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  14. oh Claire...I'm so sorry to hear this. Keeping a positive attitude will help you get through this....I hope the treatments works well. Sending you big hugs.

    Fi
    x

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  15. Hi Claire.
    I had no idea of your situation, so sorry.
    It is amazing what they can do in the Cancer department at he moment, so stay positive and strong. I hope you have someone near you family or Nurse who you can confide in. My thoughts are with you.
    Debbiex

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  16. So very sorry to hear!! My thoughts and prayers are with you, blessings from Pam in Norway xxx

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  17. Sending you both hugs. Here if you need someone to let off steam to xx Love Hazel xx

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  18. So sorry to hear your news Claire, sending huge BIG hugs and positive thoughts to you and Mark. Will be thinking of you, try to stay strong hun, much love Jacky xx

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  19. I am so sorry to hear this Claire. My heart goes out to you, Mark and your family.
    You have been in my thoughts a lot since the lovely Debs told us about this on the Pink Gem DT blog, I cannot begin to imagine how you must be feeling at the moment. I hope that the treatment all goes well and I send you lots of positive vibes.
    Take care, hugs Sue xx

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  20. OMG - my heart goes out to you and your family at this time and during the treatment too - why does it only happen to the nicest people in the world.

    Sending you hugs and you are in my thoughts, luv Sam x

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  21. Hi Claire so sorry you Mark & your family are going thro this awful time in your young lives.. think only positive thoughts you have lots of support thro your many crafty friends if you need someone to talk to..God willing & the dedicated medical team you will get thro Marks illness with lots of prayers & positive thoughts..

    God Bless you all Mark & Claire..you know where we are at Pinkgems if you need us anytime..

    luv n hugs Christine xx

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  22. So sorry to here this devastating news Claire, I have tears in my eyes and a lump in my throat. My heart goes out to you and I can't begin to image how you are all feeling. You are all in my thoughts and prayers.

    Hugs
    Cathy
    Xxxx

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  23. Hi Claire, I'm so sorry to hear this hun.. I have been hoping and praying for you both.
    I hope the treatment will work well for Mark... it's good that you are staying positive and welcoming support from friends. Keep in touch sweetie and stay strong.
    Sending lots of Love and Huge Hugs
    Sue Xxx

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  24. Oh Claire, I'm so sorry to read this, I had a feeling things weren't quite as they should be after Debs post last week. Thanks for putting us in the picture - that can't have been easy. You sound very strong and positive and I'm sure that's a great support to Mark and the girls. I so hope the treatment works well for him and that they don't find any more spots elsewhere. Everything's crossed for you both. Big hug, Jx

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  25. Oh Claire, I am really sorry to hear your awful news. I am sure you are being the source of strength for your whole family, but that is so draining for you. I hope you are finding support for yourself.

    Big hugs and thinking of you honey.

    Mary xxx

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  26. OMG Claire I am so so sorry to read this! stay strong lots of love to you both always
    Laurie xx

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  27. Oh Claire, I have no words... I'm just so sorry to hear this. I hope for the best possible outcome from all Mark's tests, and hope the treatment will help him. Big hugs, Lisa x

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  28. Oh hun I am so so sorry to hear this news knew he was not well but did not expect this. I know what something like this is like, hun having had 2 family members with it. But stay strong hun as the treatment nowbis so much better, take care and sending you love and hugs my friend live cheryl xxx

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  29. Claire, I am so sorry to hear this. I am sending you and your family big cyber hugs and hope the treatment goes well. Try and stay positive.
    Hugs Sharon. x

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  30. Claire, I am really sorry to read you are going through such a worrying time, big hugs to you, your husband and family.xxx

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  31. Oh Claire, I am so sorry to read this...Sending big hugs and hoping the treatment goes well, will be thinking of you.
    Hugs Wendy xx

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  32. Keep positive and sending Hugs to you and Mark.
    luv
    Debby

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  33. Hi Claire, I am so sorry you are all having to go through this. I can't begin to imagine what you are all going through but I am thinking of you and sending all my love and thoughts. Pam x

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  34. Oh hunnie, sending you & Mark huge hugs
    Don't forget to take care of you
    Hugs Shell xx

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  35. thoughts and prayers are with you all xx

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  36. Claire, so sorry to hear your news, ŵill be thinking of you. Jill x

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  37. I'm so sorry to hear your sad news Claire, I can't imagine what you and Mark are going through at the moment and I know that nothing I can say or do will help, but please know that I will be thinking of you and I do hope that Marks treatment goes well.
    Take care of yourself and look after Mark.
    Pauline
    x

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  38. Ohhhh Claire, that's just awful news. I'm sure you and your family are in bits. Stay strong xxx

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  39. Oh Claire, I am so sorry to read this, I hope the treatment for Mark goes well. Stay strong and positive! You and Mark are in my thoughts and prayers.
    Big hugs, Tammy

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  40. Oh dear Claire Im so sorry you are having so much pain at the moment with your hubby, I sincerely hope they are able to help him and I will be thinking of you both and keeping you in my prayers. hugs Shirleyxxxxx

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  41. I am so sorry to read this post Claire... however, I'm so glad to hear that you are doing the right thing by being positive and strong (difficult as it must be for you).... and I'm sure you'll all get through this most trying of times with the support you have both in real life, and here amongst your crafty friends.

    Sending you all BIG HUGS..
    Christine x

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  42. Hi Claire
    I'm so sorry that you are going through such a difficult time. I hope things go well with Marks treatment. Sending you big hugs.
    Lynsey x

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  43. i am so so sorry claire.my postive thoughts and hugs are with all your family.

    ((((hugs )))))
    Nic.xx

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  44. Hi Claire
    So sorry to hear your news, your positive approach will be of help to Mark,and the family,I hope you find a little time for yourself too. Hugs Meg

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  45. Claire, I am so sorry to read this...Sending big hugs and hoping the treatment goes well, will be thinking of you. hugs, Helena

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  46. Hi Claire
    Just wondering where you was.... Oh Claire and Mark... This is such sad news... What can i say.... You seem a strong person.... Hope Marks treatment well.... Thinking of you both..... Lots of love Sylvie xx

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  47. Oh dear Claire...so sorry to read this. I do hope the treatment is going well. Stay strong hun. Sending big hugs to everyone. Pat K xx

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  48. Thank you for the lovely comment you left me hun. Hope things are going well with Marks treatment and you are looking after yourself too. Sending HUGE hugs for you all.

    Donna xxx

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  49. Oh Claire, what can I say! Words do not describe how I feel. Pleaseknow I am thinking of you and here for you too. Big Hugs,

    Judy x

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  50. My heart goes out to you and Mark and I will pray that he is one of the very lucky 80% who this treatment works for! Any and all cancer is so scary and it touches so many of our lives. I'm so sorry that you and your dear hubby have this journey, but want you to know that I'll be thinking of your both and praying he wins the battle! Hugs from the USA!!

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  51. Sweetie, this must have been so hard for you to write. You know that I am constantly thinking of you and hoping and praying for you both xx

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